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Showing posts from August, 2012


“If others tell us something we make assumptions, and if they don't tell us something we make assumptions to fulfill our need to know and to replace the need to communicate. Even if we hear something and we don't understand we make assumptions about what it means and then believe the assumptions. We make all sorts of assumptions because we don't have the courage to ask questions.”  ~ Miguel Ruiz

One of the major pitfalls of having an invisible illness is that things do not always appear as they truly are. I mean me. And you. Or the cashier at the grocery store. Maybe even your lawyer, or doctor, or mechanic. The meaning of the term invisible illness is pretty self explanatory but in my case and for thousands like me who have Sjogren's syndrome, autoimmune illness, or any other type of chronic illness, having an invisible illness means we can look perfectly well on the outside and be suffering with a host of symptoms on the inside. Because of that, a lot of assumptions…

Old Orchard Beach Escape

Chuck and I spent four days in Maine recently at our favorite retreat, The Gull Inn in Old Orchard Beach. This was some of our time away, in pictures. Photos courtesy of Chuck Myers:

Why I am Staying Gluten and Dairy-Free

Over the past month, possibly even longer, I have been thinking a lot about whether this whole gluten and dairy-free eating plan I have been doing is worth it. Although it has gotten much easier, once I started doing Weight Watchers in addition to it, it made things a bit more complicated and challenging. However on two separate occasions, I intentionally ate a food item with gluten and/or dairy in it and noticed that I had some joint pain afterwards. Coincidence? Maybe. However at the time, it wasn't worth the drama of investigating the issue any further.

That was, until I was off prednisone for over a month and my old enemy, joint pain, came back into my life on a regular basis. Despite a regular exercise regime and eating healthy, the joint pain and stiffness associated with arthritis began to worsen as well as the autoimmune related migraines, fatigue, and worsening of dryness symptoms. Is it possible that if I was eating gluten and dairy that the symptoms would have been mu…


"We all have an inner voice, our personal whisper from the universe. All we have to do is listen - feel and sense it with an open heart. Sometimes it whispers of intuition or precognition. Other times, it whispers an awareness, a remembrance from another plane. Dare to listen. Dare to hear with your heart.” ~ C.J. Heck

As I have spent all of today trying to take care of several issues, including packing, in an attempt to get ready for a mini vacation with Chuck, it dawned on me how just emotionally stressful the last few weeks have been for us and what a welcome relief this time away will be. You know how it is, we all do. You go through a period where it is one thing after another and you need a break. Usually for me it is more the need for a physical break which involves spending more time at home, not away from home. Right now though, the need to be away is overriding my physical needs. And truth is, I can be just as happy resting on a front porch overlooking the ocean or la…

Before and After

At my Weight Watchers meeting this past Tuesday a woman that comes week after week hit her one hundred pound weight loss mark. It was a very exciting meeting! We all knew that it has taken her months to lose those last few pounds to reach that goal. As she told her story, I was impressed by her determination and I took note in the parallel between our journeys. Like me, it has taken her a while to lose that weight, one pound at a time. She has had ups and downs along the way and overall it has taken her three years to lose the one hundred pounds.

While she was telling her story, she pulled out a photograph of her former self 100 pounds heavier. She has carried this photo around with her during her weight loss journey these past three years. She agreed to pass it around so that the rest of us may gain inspiration from her amazing journey. The difference was shocking. She did not even look like the same person.

It made me realize that as I am going through my own weight loss and health…

"What Do You Do All Day?"

“Disability is a matter of perception. If you can do just one thing well, you're needed by someone.”  ~Martina Navratilova

What do you do all day? A question that I have been asked many times by a variety of people. For those of you who don't know me, the question gets asked because I have not worked at a job for approximately three and a half years now due to a medical disability. I am forty-one years old. I have no children. In a society where most citizens work, stay home and raise children, do both, or are retired, I am an anomaly. And yes, I am very well aware of this fact.

I will be honest here. Up until recently, anytime this question was asked of me, I would get angry and defensive. The question gave me the impression that if I was not working a job outside of the home or raising kids in the home, what else was there to do in life? It made me feel that because I could not do either of these things due to circumstances way beyond my control, I was no longer useful. An…