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Showing posts from November, 2013

Mentally Becoming A Runner

About seven weeks ago, I decided I was going to attempt running. For more of the back story on that, you can read about it here: Running, Sjögren's, Races, and Disney.


As I mentioned in that blog post, this running thing is a big deal. First and foremost, it is a big deal because of my autoimmune issues, which include problems with my joints, asthma, fatigue, etc. The second reason it is a big deal is because I was told that I would never be a runner due to these issues. I will admit, it has been a challenging seven weeks. The very first time I ran, I thought there was no way in hell I could keep this up, never mind get up to the 3.1 miles needed to run my first 5K. At that point, a race was just a pipe dream.


For the first two or three weeks, I would run only a mile, and then feel like I was going to die afterwards. But also like I mentioned in the previous blog entry, I became very dedicated to doing strength training and other activities, such as yoga and Pilates, which would …

Tales From the Dry Side Now Available!

Well, it would appear that Amazon is really on the ball these days because Tales From the Dry Side: The Personal Stories Behind the Autoimmune Illness Sjögren's Syndrome is already available for purchase from their website; both in paperback and Kindle formats. There is a link on this blog page, in the right hand column, that will take you directly to the book's Amazon purchase page. I cannot even tell you how long it took me to figure out how to get that widget on my blog....or even figure out that a widget was what I needed!

The paperback version and an eBook are also available directly from the publisher at www.outskirtspress.com.

The Barnes and Noble Nook account is still in the process of being verified, but I will put out a notice when that is set up for all you Nook fans!

The Sjögren's Syndrome Foundation has been in contact with me and their plan is to launch the book from their organization, via their book store and newsletter, sometime in February/March, which w…

Tales From the Dry Side: The Personal Stories Behind the Autoimmune Illness Sjögren's Syndrome: Published!

I got an e-mail today confirming that Tales From the Dry Side was officially published. Very exciting news!! It has been almost exactly two years since I first got this project underway and I have to say, this is a great day. So much work on the part of so many people: my story contributors, my family and friends, my Kickstarter contributors, and my community. I owe you ALL a debt of gratitude.


There will be some lag time until the general public can actually get their hands on the book. The publisher is mailing me a hard copy for my review so I can make sure they did not make any mistakes when it went to press. Once I review it, I will order all of the Kickstarter books and get them in the mail ASAP.


What happens is that is takes the wholesale distributor (Ingram) about two weeks from today to get the book listed with the retailers (i.e. Amazon) and then the retailers will need some time to get the book listed on their sites. You will be able to purchase the book through a variety …

Disney Honeymoon Part Two: Getting Myself Around Disney World

I wasn't sure exactly how I was going to do this whole Disney blog series. I originally was going to write about it park by park and I still may do that, but today, I want to go with what I think is most important and that is how I, Christine, a person with Sjögren's syndrome, and a lot of complications that come along with that, managed to get around Disney for eight days.


If you would like to read my first Disney Honeymoon entry, you can find it here: Disney Honeymoon Part One: Animal Kingdom Lodge.


Previously, I also wrote a blog entry, before going to Disney, that you can read here: To Scoot Or Not To Scoot, That Is The Question. It is the precursor to this blog entry about how I struggled with the decision about whether or not to rent a scooter for our trip.


As all of you know who have been to Disney know, they have a bus transportation system that runs throughout the Disney property. We did stay at a Disney property called Animal Kingdom Lodge (AKL). I did quite a bit …

The Impact of Tales From the Dry Side

I got a very exciting e-mail this week from my publisher. It was notification that my galley proofs for Tales From the Dry Side: The Personal Stories Behind the Autoimmune Illness Sjögren's Syndrome were ready for my review. This is a big step in the publishing process for me. Galley proofs are basically the actual book digitally presented for me to review; the cover, the interior, all of it.


It's a scary process editing these galley proofs because if there are any mistakes, the full responsibility is mine. I have to say, as a perfectionist, that is much more responsibility than I want. On the other hand, one of the things I have enjoyed so much about the self-publishing process has been the opportunity to create a book that is completely and uniquely mine. With that, comes great responsibility. However, I can only do my best and in my heart, I know I have given this process everything I have. The final product, with any imperfections, will be enough. Just as I have been enou…

Women of Faith

This weekend I had the opportunity to once again attend a Women of Faith (WOF) conference. For those of you not familiar with Women of Faith, it is an organization that runs events all over the North America. They are a Christian-based group based in Plano, Texas. They produce several types of inspiration events with a mission to connect or reconnect Christian women with their faith. The arena events are scheduled throughout the year and every year, there is a different theme. The theme for this year's conference was "Believe God Can Do Anything"." Last year was the first year I attended the conference and to be honest, I am not sure how I originally heard of it. But I had the opportunity this year to go again with my aunt/friend, Jean, and once again, I was not disappointed.


Like last year, I was also not feeling well once the first weekend of November came around. Last year, I was struggling with sudden abdominal pain and some vomiting. I ended up in the hospital…