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Showing posts from December, 2013

Looking Back And Looking Forward

I had a moment yesterday. Like one of those moments (actually, several moments) where you realize something important. I was lying on an exam table, having an abdominal ultrasound done. It wasn't a big deal, minus the fact that the tech was specifically looking for my gallbladder and that little booger was tough to find. I go for ultrasounds every several months to check a previously suspicious growth that is attached to the gallbladder.


I first found out about this growth in November 2012 when I was hospitalized with dehydration, vomiting, and stomach pain. It ended up that the issue causing my symptoms was an esophageal motility disorder, mostly likely related to Sjögren's. I also had severe GERD. When they did a bunch of tests to initially find out what was going on, a surgeon appeared in my hospital room telling me that by the way, they also found this thing on my gallbladder that shouldn't be there and although gallbladder cancer is very rare, we might have to consid…

What Does It Mean To Love Someone?

I have had the topic of love on the brain lately. And by love I don't mean just the romantic kind, but rather, the love that exists between two human beings, no matter what the relationship is. I was married six months ago, I went to a family wedding recently, I have ended several relationships in the past year for one reason or another, and I have this crazy dog that is getting older whom I love more than just about anything else in this world. My capacity to love is great and my ability to receive love is even greater.


We are so reckless with the term "love" sometimes. The words come tumbling out of our mouths, sometimes without a second thought. Maybe I am a bit of a skeptic on this topic, but to me, there is no such thing as love at first sight. I can hear the readers gasp as they read this, as I have made no secret about my overwhelming and whirlwind courtship with my husband. My attraction to him was immediate, but I did not "fall in love with him" at fi…

My Sjögren's Update (And It's Not About The Book!)

I think it has been a little while since I have posted an update about how I have been doing medically. There are many reasons for that; I was away on my honeymoon, I have been tied up with the book being published, and most importantly, I have been feeling better.


I started back on Plaquenil sometime in August as it was clear that the alternative medicine treatments alone were not doing the trick. They help, a lot, but they were not enough to keep me from having more complications, such as with my bladder. I wasn't doing terribly, but there was a lot of room for improvement, hence why I went back on Plaquenil. I never thought Plaquenil did much for me in all the years I was taking it, which is why I stopped it in February, but I may have been mistaken on that.


By the middle of September, I was still having a lot of issues with increased joint pain, especially in my shoulders, hips, and hands, swollen lymph nodes that were causing some alarm, fatigue, and this new interstitial cy…