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Showing posts from November, 2014

Low Dose Naltrexone Update

I wish I had time today to do a much longer post on this, but it is the day before Thanksgiving and this is the year I permanently take over the Thanksgiving dinner from my mother. So, my husband and I are hosting tomorrow and it will be our first holiday celebration with some members from both sides of our family here for dinner. Lots of work to do. I am fortunate that my husband is a great cook so he does the turkey, peels the potatoes, and I do the other sides...


I noticed though that my low dose naltrexone (LDN) blog entries are getting a LOT of traffic over the past month or so and it appears that people are looking for information on it, especially in regards to Sjögren's syndrome, so here is my update:


I was on 1mg of LDN for a month. I will be honest, I have been feeling like crap...no better word to describe it. I don't think it was related to the LDN, but related to the fact that I am no longer on prednisone or any other autoimmune meds except Plaquenil. I feel that…

24 Hour Challenge Update

I wrote a post yesterday morning about how I was going to try and go 24 hours without complaining. You know, jack up that whole self-awareness thing and all because I honestly think that its all those little negative things that add up throughout the day that eat away at our outlook on life and on ourselves. You can read it HERE.


So how did I do? Well, I think overall, I did OK. Not perfect, but OK. I was sailing along just nicely until my husband called after lunch. He asked how I was doing and then I complained about how I dropped a ton of rice on the living room rug at lunch and the dog was too much of a snob to go eat it up from the rug. Of course, if it was hamburger, she would have eaten it before it even hit the floor! Anyways, this meant I had to lug out the vacuum, which was going to be quite a task since I had done yoga that morning for the first time in months.


Then it happened.


My husband called me out on my complaining! He had actually read my blog post from yesterday mo…

24 Hour Challenge

This is going to be short and sweet.


Starting from when I woke up this morning, I am challenging myself to go 24 hours without complaining about anything, and I mean ANYTHING! I am not typically a negative person, but I often find myself just pissing and moaning about the most ridiculous things. Granted, I have had a lot of good reasons to piss and moan this week, but that makes it the perfect time to take this challenge.


I will let you know how it goes...


By the way, what do you think of the updated blog design?

Loving Molly

I was at a dinner party with a group of friends last evening and one particular couple and I were discussing the topic of our dogs. After years and years of love and devotion, they recently had to put down their fourteen year old beloved pet this past year and in exchanging stories about pets, I found myself sharing my story about Molly. They had read anecdotes and seen pictures of her on Facebook, but didn't know some of the details of my trials and tribulations with Molly, my thirteen year old basset hound and black lab mix.


I was scrolling through my blog today and I realized that I don't write about Molly much here. I did write about her back in 2010 when we went through a horrible medical experience together. One which resulted in me having to make a decision about whether to put her down, or spend $5,000 on a surgery that looked promising in some aspects, but held no promises for either of us in terms of her quality of life. A story I am happy to say, had a happy ending…

Revisiting Low-Dose Naltrexone (LDN)

"LDN may well be the most therapeutic breakthrough in over 50 years. It provides a new method of medical treatment by mobilizing the natural defenses of one's own immune system." ~ David Gluck




I have previously posted at least twice about my trials with a little-known medication called low-dose naltrexone, LDN for short. You can read those previous entries HERE and HERE.


However I have decided that it is worthy of another post, because I am about three weeks into my third trial with it and I have recently learned more about the medication.


Naltrexone is a prescription medication that has historically been used in larger doses to treat alcohol dependence and opioid addictions. Since the 1980's, some doctors have discovered that it can be used in smaller doses, hence the name LOW-dose naltrexone, to successfully treat some chronic illnesses, specifically autoimmune diseases, cancer, HIV, fibromyalgia, etc. It accomplishes this by regulating cell growth and slowing dow…

Plaquenil and Retinal Toxicity

I will be honest; I consider myself a very well-informed and educated person in regards to my illness. I have often joked that I know more about Sjögren's syndrome than most primary care doctors, and possibly more than most non-rheumatologists. My very rocky road with this illness, coupled with an innate desire for knowledge, learning and empowerment, is the foundation for being an expert patient.


However this pretty much all went to hell during my last opthalmology appointment. For a variety of reasons, I made the very scary and drastic move of leaving my rheumatologist in CT and started seeing one at Massachusetts General Hospital in Boston. It ended up being a smart move. This new rheumatologist then referred me for for two consults, one of which being to Massachusetts Eye and Ear Infirmary in Boston to see an opthalmologist who specializes in ocular immunology and ocular inflammatory disorders. Basically a fancy way of saying that he deals all the time with people who have Sj…