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Showing posts from October, 2015

Work and Chronic Illness

I posted a status update on my personal Facebook page this morning and I realized later on in the morning that I might gain some insight by posting it here as well.


I've been wanting to do some blog posts about work and chronic illness and I've wanted to write a little about my new job, so I guess this is as good a place to start as any.


As I've mentioned previously, I am in the homestretch of a very challenging and difficult month schedule wise. I am really hoping, that things will settle down a little for me once we go into November. I am definitely not getting the recovery time I physically need right now.


That got me to thinking this morning. I typically work two days a week for a total of fourteen hours. I also sometimes work a third day at my substitute school nurse job although lately that is rare. I am working three days this week. I honestly don't understand how people with chronic illnesses like Sjogren's (or any other illness) work full-time. I say that…

Low Dose Naltrexone

This is not going to be a lengthy entry. It's one I wasn't even planning on writing, but I wanted to share something with you all. I get e-mails from time to time from readers asking about how things are going for me with using low-dose naltrexone (LDN). My LDN posts also typically get the most hits.

I think LDN is one of those tricky treatment options where you don't know exactly how much it is helping until you aren't taking it. It is also tricky in regards to managing the side effect related insomnia that comes with it.

Well, it took me the better part of two years or so, but I was able to get around the sleep issue just by titrating my dose up slowly over the course of about eight months.

Then I came off it.
And it's been hell. Friggin' nightmare actually.

Long story short, I had to stop taking it because I need gallbladder surgery. Because I started a new job the exact same week I was told this, I am putting the surgery off. They wanted me to have it in ea…

Grounding My Soul

My life has been caught up in a whirlwind of busyness lately, probably the most I have seen in years. When the month of October descended on me, much quicker than I planned by the way, I realized that I have something going on every single weekday for the entire month, with the exception of one solitary Monday. I would like to point out that I NEVER let that happen, if for no other reason than I physically cannot handle it.


I looked at my October schedule, staring at me as if to taunt me and say "there's no way you can do this" and I made an honest attempt to cut some scheduled things out of it. Except for one problem...


I couldn't.


Those weekdays are packed with either work, a ridiculous amount of medical appointments, school nurse licensing classes, and one charity event that I just cannot miss. On many days, I am double booked and know that I am going to miss some things that I really wanted to attend, like my husband's yearly client event at work. With one e…

Plantar Fasciitis and Extracorporeal Pulse Activation Technology: Part One

I first noticed the pain around May of 2014. I had been running/walking for about six months. Running/walking was new to me and I had fallen heads over heels in love with it. Well, maybe not with the running itself, but more the high I got when I ran. And when I completed a race. I figured that the pain I had in my heels was from overuse so I cut back on my mileage.


I also have a chronic illness called Sjögren's syndrome that can cause inflammation and issues with joints, tendons, and muscles. I had recently weaned off prednisone for the first time in a very long time and I thought my body just needed to adjust to functioning without it. But by July 2014, I was having major difficulties with being on my feet.


I saw a podiatrist in August and was diagnosed with bilateral plantar fasciitis with my right foot pain being worse than my left. I started with conservative treatments such as stretching and ice. If you have ever had plantar fasciitis (PF), you know that it can be a relentl…

"What I Have Learned as a Rape Survivor"

I have a new blog post ready to go up and two more turning over and over in my mind, waiting for me to furiously type them out.

All three of them are going to wait.
I came across something this morning online that I would like to share with all of you.

Two years ago this week, two young women I know were raped. Two women who have never met, both between the ages of 18-23 at the time of the incidents. Both live in separate parts of the country. Their only connection is that in the thread of social connections we all have, I know both of them.


The details of their ordeals are not for me to know and/or discuss.But here's what I can tell you:

1. 1 out of every 6 women has been the victim of an attempted or completed rape in her lifetime.
2. In 2003, 9 out of 10 rape victims were women.
3. 80% of victims are under the age of 30.
4. 44% are under 18.
5. 29% are age 12-17.

This makes me stop and pause. I have not been the victim of a sexual assault. But how many people do I know have be…