"In order to write about life, first you must live it." ~ Ernest Hemingway

Category: crisis (Page 1 of 2)

Life’s Challenges

I promised myself I would not go through another day without blogging. I noticed this past weekend that it has been almost three months since I posted anything. I have done some writing since my last blog post, but it was writing done just for me. That is one of my biggest challenges with having a blog; being an authentic writer while still not doing damage to other people in my life.

A LOT has happened since August. It’s funny because I kept telling myself, “Oh this would make a great blog post” or “I should write about this.” But sometimes I get like that: I just want to experience life without feeling obligated to write about it all the time.

In August, my husband and I took a dream trip to Ireland. It was a trip we had been talking about since we started dating over six years ago. We had the money saved but I kept stalling on planning it due to my health issues and my fears about being in another country with said health issues. I finally got over that and we had this amazing eleven day adventure (with prednisone on board to get me through the adventure) of Northern Ireland, Co. Donegal, Co. Mayo, Co. Galway, Co. Offaly and one of the Aran Islands. That is a topic I will still probably blog about at some point in the future!

About a week after we got home, we got SLAMMED with one crisis after another, some major, some annoying. We had some large, unexpected expenses, an unwell family member, a major family relationship conflict, and then our fifteen year old dog, Molly, ended up in the E.R. and was diagnosed with congestive heart failure. We had to make a decision and we decided to go ahead and bring her to a cardiologist for treatment. She is doing better in regards to her heart, but the side effects of the medications have made life much more challenging for my husband and I. And if you’ve ever had an elderly dog, you know the expense that comes with keeping them comfortable.

Molly has also had some challenges just in terms of getting old. It would appear that she has very little, if any, hearing and this past weekend we noticed that maybe her eyesight is becoming an issue. We did decide that we will likely not go any further in pursuing treatment when the next medical crisis for her comes along. We were hoping for her to get through this Christmas and with less than two weeks to go, that possibility looks very likely.

That was all in September. In October, we got news that one of my closest friends, Steve, who had been living with Stage 4 colon cancer for over two years, was getting sicker. We are an hour and a half away from him and his family, so a lot of October was spent traveling back and forth and spending as much time with him as possible.

On November 5th, my friend lost his brave battle.

That experience with him was life changing for me and it was one that requires and deserves so much more than what I am going to write here today.

A story for another time.

Then on November 24th (Thanksgiving Day), my sister-in-law, Stacie, passed away very unexpectedly. This was made more difficult by the fact that we live fourteen hours away from where she lived. She was the first person my husband ever told me about when we started dating. I knew her death was going to be earth shattering for him.

I just realized this afternoon that I still have not fully processed her death.

As I am writing this, I think it is hitting me that I have been in survival mode since August, even with the vacation. One day at a time.

Get things done.
Be present.
Just get through the next hour.
You can do it.
You can survive this.

And I did. Of course the stress contributed to a major autoimmune flare for which I am currently on a three week run of prednisone for…one of my tougher prednisone runs, that is for sure. And, I have been having some issues with anxiety which has not been a major issue for years. But, I have people helping me with that and more importantly, I know how to help myself through that.

My attitude right now is to go into Christmas taking care of myself as much as possible. This has meant making some changes to our routine and traditions this year. It has meant a lot of tolerance and understanding from my husband towards me and from me towards my husband. The past few months have reminded me of how important it is to choose well when it comes to a life partner.  It has also reminded me of how very important it is to choose well when it comes to the people we surround ourselves with.

Isn’t that mostly what life is about though? Going through life with people? In the past few months I have learned so much about myself, my husband, and who is going to be there at times when the phone rings at 8am and your friend of thirty years tells you he has about two weeks to live and you are in the car headed out of town less than an hour later, not sure of when you will be back and what your life will look like when you do get back home.

Those are the moments that define you.
And the people who loved me through it are the ones that remind me of how rich my life is.

Go love your people.
Tell them.
Show them
Put your phones away and be with them.

Hang On As Tight As You Can

 
 
“I’ll lean on you and you lean on me and we’ll be okay.” ~ Dave Matthews Band
 

It is the day after Christmas and I am sitting here thinking of all the blog entries I want to write. My writing has taken a nose dive recently for a variety of reasons and I can always tell when it has been far too long since I have done any writing. Whole sentences and paragraphs start to form in my head in the middle of the night when I am fighting my enemy, the evil insomnia. Or I will be having a conversation with someone and sometimes find my mind wandering to all the thoughts in my head that I want to get written down.

Today is my day to get my mind and spirit back to my passion. To be honest, over the past month or so, I have been so distracted and overwhelmed, that I couldn’t even concentrate long enough to put all of those sentences and paragraphs together. But like so many other times, it was my fiance, Chuck, who gently reminded me with one of his Christmas presents, that writing is the one of the things in this world that I need to do.

He is so good like that; paying attention to what is going on with me and supporting me. I used to worry that because of my illness, he gets the short end of the stick, having to be the strong one more often than not. We have only been together a little over two years and we have endured our share of challenges, in regards to life, my health and, as all couples do, our relationship. Usually though when some type of challenge faces one of us, the other person is in a good enough place to be a strong support. But then what do you do when:

One of you gets so sick that you are hospitalized for five days. And more testing and uncertainty follows.

One of you is having a lot of stress at work.

Your dog gets sick enough to require four vet visits in one week and multiple tests.

One of your cars breaks down.

One of you has been hurt by someone you love and trusted.

One of you is faced with the possibility of another autoimmune illness.

One of you has a sister who undergoes life changing surgery.

One of you is told that you have a growth on your gallbladder that has a remote possibility of being malignant and you have to make a decision about whether it is worth the risk of surgery.

Christmas is fast approaching.

One of you is told that your mother is dying.

And all of this happens within the time frame of one month.

So what do you do? What do you do as a couple with so little time under your belt when both of you are stressed beyond limits that you think you can handle?

They say that love conquers all but I am not sure I agree with that anymore. Rather, I think love, friendship, determination, faith, compassion, selflessness, and most of all communication conquers all. Because once you are committed to someone, experiencing crisis is no longer a solo event. You have to be able to not only support your partner in their struggles, but deal with your own feelings as well. It is easy to get caught up in your own challenge of just getting yourself through the day, but it’s no longer just “your” day. The day belongs to both of you.

I cannot speak for my fiance but for myself, in the past month, if I was trying to be there as a support for him, I rose to the occasion. Almost to an extreme. If I knew he was stressed out and then asked me how I was doing, I would sometimes downplay something going on with me. I think there is a time and place for that, depending on the seriousness of what which each person is going through, but I am here to say that for the most part, it doesn’t work well. Because he knows me so well, he then worries more. Being a martyr for your partner’s sake is not the answer. Open and honest communication is.

We are by no means on the other side of the current challenges that we face and we may not always get it right, but I can say what has worked well:

*We ask each other “how are you today?” It seems like such a basic question but if you are in a relationship, think about the last time you actually asked your partner that question.

*By sitting down together, we have learned to prioritize the most immediate needs of the week, day, and even hour. It may be him traveling to Boston Christmas morning to spend time with his mother, knowing that I physically can not make the trip that day. It could be me doing some Christmas shopping for him so that he is freed up to deal with other things.

*We make sure we connect as frequently as possible and make each other the priority right now. I will actually consciously have to stop whatever I am doing sometimes and make sure that I have not been so wrapped up in my own problems and stress that I have not made myself emotionally available. On the flip side, I will also ask him if he needs time alone.

* Make sure we laugh together every single day, at least once.

* Depend on other people. Historically, both of us are terrible at this and the events of the past month have taught us that not only is it okay to ask for help, but that you also need to know who you can depend on for help. Especially when you need a listening ear. One human being cannot be all things to another.

Finally, and maybe most importantly, we hang onto each other as tight as we can.

“Why Me?”

Every hand in need that reaches for me

is a piece of my salvation.
The troubles they have mirror mine.
In acknowledging their demands.
I help heal their wounds, give them hope.
What I want is to be selfish and sit in the dark.
I want to scream… WHY ME!
But with the Grace of God, I cannot.
I sympathize with the pain and sorrow.
My compassion is the light by which I walk,
it is what heals me.
~ Cyndi Lamacchia
This is an excerpt from the poetry that was read during our Easter Cantata at my church last Sunday. This particular part was written by another member of my church and in the moment that it was being read aloud by my minister, the words grabbed me. It seemed to echo how I had been feeling about my life over the past several weeks.
I think it is a great piece not only because it sang to me, but also because it can be interpreted in many different ways; both religious and non religious. My first interpretation upon hearing it is that it is about Jesus. But then I realized that it could also be about many of us; those who are facing huge obstacles in our lives. Sometimes one obstacle right after another in a relentless fashion.
This particular Sunday morning found me feeling lousy and I was questioning whether I should get up and go to church at all. I was battling a sinus infection on top of dealing with some of the same ongoing neurological issues and I was also recovering from a nasty fall the week before. Not even to mention that I was weaning down my dose of steroids, which typically causes my body a lot of grief until my body readjusts to the new dose. The assault on my body just seemed to continue week after week. And honestly, I was sick and tired of it.

As Chuck was getting dressed that morning and I was debating in my mind whether it was wiser to get up and go or stay home and rest, a statement that is very atypical for me came blurting out of my mouth. I said that maybe I should get myself to church if for no other reason than to ask God why he keeps throwing one health obstacle after another at me with no respite. Why can’t he just give me a break? I thought I was half kidding when I uttered the words but the thoughts and words came so fast that I think there was some truth to them. Because looking back at the past three months, it really has been one issue after another and let’s face it, I already had a full plate to begin with.

“Why me?”

I don’t do the whole self pity thing too often and to be honest, I don’t think that God is up wherever he is plotting different ways to torture me. I believe in a loving God. Not one that punishes us. I like to think that there is a reason for most things that happen in life but lately, I am not so sure about that. Am I being tested? Do I just have terrible luck? As you can tell, I have been doing a lot of questioning lately about why I am in the place I am with my health. I don’t blame God necessarily but I do sit back and wonder about it. Am I experiencing this in order to appreciate the many blessings that I do have in my life? Is it supposed to make me a stronger person? Or is it just the way it is?

Regardless, the onslaught of physical problems over the past three months has all led to me wanting to selfishly, as this poem mentions, spend more time than usual in the dark.

Stay in bed. Stay home. Let the illness win.

But I do not.
I keep going.

I keep going for many reasons:
For the family and friends who love me and have cheered me on day after day, week after week.

For all those affected by Sjogren’s syndrome and other chronic illnesses I have met online and in person whose hand in need has reached for me. At times they have been MY salvation.

For myself because I like to believe that someday the light by which I walk will be much brighter.
It is very easy to fall into the “why me?” trap. Although perhaps a perfectly natural response, it is a futile one. The time and energy spent in our self pity over events that we may not have control over leads us to make less than optimum decisions. Decisions are something that we DO have control over. Instead of making the decision to give into our crisis or illness, we can make attempts at avoiding the dark place. Like deciding if we truly need to stay in bed and rest versus making an attempt to be in the world. Or like the decision to push ourselves on a difficult day to get outside and walk; even if it is just a very short distance. Maybe making a conscious decision to replace “why me?” with “how can I help you” to another person. It is not always easy to make these decisions as sometimes we should rest or not take that walk if it will do more harm than good.

This is the point in my blog entry where I wrap it up with some heartfelt opinion or realization but truly, I have none today. And that is not a bad thing either. It means that I still wrestle with the issue and like is implied in the poem, I am not alone in this. I would like to know what my readers think about this topic.

Do you ever sit back and say “why me?”

What do you do to avoid getting sucked into that dark place?

Do you feel that it changes the way that you think about God?

Photo Courtesy of Google Images

Nor’easter 2011 ~ Part Two: Nine Days

You can read Part One of this blog entry here: Nor’easter 2011 ~ Part One: Survival

We had hope after seeing our precious home all in one piece, but the aftermath from the storm was just beginning. It became quickly apparent to us that it would not be feasible on that day to live in our house. Access to the house was difficult at best and since we had lost power, we had no heat or water. Although we had a fireplace, I knew staying there would be extremely difficult for me since the cold (45-50 degrees) temperature of the house would affect not only my joints, but the Raynaud’s symptoms I was experiencing as well. There was also concern over the fireplace affecting my asthma. After weighing our options, Chuck and I decided to go to my brother’s condo which was a few towns over. His two bedroom home was going to be cramped with both of us, my brother, and my parents (who were also displaced) being there, but at this point, it was our best option. Luckily, our dog sitter was able to obtain a generator for her home and she agreed to keep our dog Molly with her for as long as we needed.



Trying to get down this road the morning after the storm.


Although Chuck was optimistic about how long our power would be out, I was not. Just from looking at the damage to the trees, wires, and telephone poles, I knew it would be several days before services would be restored.

Several days?
It was nine.
Nine days.
Nine days of uncertainty. Nine days of living out of a duffel bag. Nine days of traveling back and forth from wherever I was staying back to Belchertown. Nine days of trying to manage my autoimmune illness without the tools I needed. Nine days of conflict, worry, and stress.

The days immediately after the storm were like nothing I had ever experienced. Although we were able to hear from all of our family members, the same could not be said for our friends, especially the friends who were at the church with us that Saturday night for the play. Cell service (except for occasional texting) was down for about 24-48 hours and landline as well as internet communication was non-existent for many people. As we drove through Belchertown and other surrounding communities those first two days after the storm, nothing appeared to exist as it previously had. Supermarkets were partially lit on generator and open for nonperishable food only. Cashiers wore winter coats over their clothes. Access to gas was a serious problem and wait times at the gas pump could be as long as an hour. Schools were closed indefinitely. Shelters were set up in many communities for people who did not have an alternative place to live. Many people could not go to work due to massive power outages throughout New England. Life as we knew it had changed.



The red circled area is the massive power outage on the east coast



When an event of this magnitude occurs, oftentimes people feel isolated and disconnected. Although I was staying with various family members throughout the week,  I still felt very disconnected from my community and the world in general. It was posted on Facebook a few days after the storm that the parish hall at my church would be open as a shelter during the day. I clearly remember the first day I went to spend some time in the warm parish hall. I had been at my house for about an hour getting some clean clothes and necessities as well as checking on the house. Then I went to the church. I was so exhausted, in pain, and frustrated with still not having power. I walked up the steps into the parish hall and there was my minister, with a smile and a hug. All of a sudden, I felt reconnected. I felt like I was home again.

There were a lot of other emotions I felt that week that I was not used to experiencing or at least not experiencing so intensely. Anger…fear…helplessness. As the days continued on, the biggest issue contributing to all these emotions was the inability to get our power restored. The storm was on a Saturday. Fallen trees were not removed from our road until Wednesday and we did not see a single utility worker until Friday. Every time I would drive down the road, I would hold my breath in the hopes of seeing a truck from National Grid (the power company for my town) working on the lines but for five days, there was nobody. There are many theories as to why this situation happened the way it did. Some people say the storm was so devastating and covered such a large area, that it was impossible to get power restored quickly. Other people were saying that National Grid was unprepared for managing a disaster. Now looking back, I personally feel that it was a combination of those two factors. The reality was that at the end of the day, it didn’t matter the reasons. I was still homeless.

  I knew everyone I cared about was safe. I knew my home was intact. But as the days went by, I became more and more desperate to return to my routine. I missed my dog. I missed sleeping in the same bed as my boyfriend, who had decided to start sleeping back at the house in order to keep an eye on our house. Things were not the way they were supposed to be. I was baffled with myself because I was so fortunate in that we were not injured, our home was not destroyed, and I had a warm place to stay at night. What right did I have to feel so upset?

What I came to realize over the course of those nine days is that I had every right to be upset with the situation. My safety had been threatened. My home had been threatened. My overall wellbeing had been threatened. I was a victim of a natural disaster.

Victim.

This is not a word I like to associate with myself but that did not make it any less accurate. We were all victims on that fateful day in October when Mother Nature decided to take her fury to New England. But the residents of Belchertown, Massachusetts, and all the other areas hit by this devastating storm became more than victims. We became survivors, in every sense of the word. We stood by each other as best as we knew how with what we had. We gave refuge to each other. Sometimes that came in the form of a warm place to sleep at night. Sometimes it can in the form of a hot meal after eating packaged food for days. Sometimes it came in the form of a hug or a safe place to cry. I know in the town of Belchertown, I felt, as I have in the past, a feeling of community.



Our road (Route 9) two days after the storm



It has now been twenty hours since the power to our house has been restored. Twenty hours since I returned home and got my life back. But not exactly back to the life I knew. It’s a little different now. The shower feels hotter. The bed feels more comforting. The trees in our yard give me pause now.



I am a little more vulnerable than I used to be.
More humble.
More appreciative.
All because of nine days.

Nor’easter 2011 ~ Part One: Survival

“If you have a major disaster involving hundreds of thousands, or in this case millions of people, whether it be a natural disaster or an act of terrorism, the first 72 hours are going to be totally chaotic no matter what you plan to do.” ~ Warren Rudman

We went out that night, despite the weather warnings of a significant snowstorm. Snowstorms in New England are not a novelty. Seen one snowstorm, you’ve seen them all is my thought. I was involved in our church’s production of the popular play “Our Town” that evening and as they say, the show had to go on. The cast had been rehearsing for weeks and this particular Saturday night was the last performance. I probably would have given anything to stay home that night due to a recent flare up of my autoimmune symptoms and from keeping a more hectic pace than usual over the past few weeks. But I had committed myself to the show and I was determined to see it through to the end.

It began to snow around 2pm that afternoon and as I got ready to be at the church for 6pm, I kept telling myself that soon I would be able to be at home and snuggled in my bed. I had nothing scheduled or planned over the next several days, except for Sunday church service, and I could get some rest which would hopefully help alleviate some of my symptoms. I had decided to send my dog to the dog sitter’s house overnight since we would be away from home for longer than usual that day. Little did I know that I would not see her again for five days.

During that afternoon and evening, the winter storm blew through parts of New England causing widespread devastation. Snow total amounts in Western Massachusetts varied between 10 and 30 inches. Trees were still loaded with leaves; therefore the snow and wind caused damage similar to a hurricane, rather than a snowstorm.  While we were inside the church entertaining about fifty to sixty people and putting on a great performance, unbeknownst to us, our small town was being ravaged by the storm to a degree that none of us could have anticipated.

We decided to postpone our cast party after the performance that evening and got into our cars to make the slow journey home. As Chuck (my boyfriend) and I drove at a snail’s pace through the center of town, I started to get the eerie feeling that this was not just a typical snowstorm. Everything was pitch black; the signs for the stores, the traffic lights, and the street lights, everything. It was difficult to even navigate ourselves through the familiar streets without our usual landmarks and traffic signals to guide us. Since we only live about seven minutes from the church though, I figured if we took our time, we would make it home eventually.

That was, until we came to our road, which is actually a main state route that traverses the length of Massachusetts (Route 9). Cars were backed up in front of us although initially, we could not determine why. Cars that were coming towards us in the opposite lane skidded this way and that way, narrowly avoiding crashing into us. Some cars were abandoned right in the middle of the road. To say the road conditions were treacherous would be an understatement. The road was pitch black and with limited visibility. Tree limbs and whole trees themselves were falling onto the road. We couldn’t go forward and we couldn’t go back. As we eventually moved a little further along the road, we were told by another motorist that one of the trees had fallen across the road onto a car and there was no way through. There were no police or emergency personnel. Vehicles were turning around and heading back towards town, which was delaying the traffic. Cars without four wheel drive were requiring several people to push the vehicle up the hill. At that point, we turned around in the road and began heading back towards town.

As we waited for each car to be pushed up the hill, I sat there with my heart racing. Very few times in my life have I ever been that scared. Why? Because we were sitting ducks. As we idled on the narrow road with guardrails on each side, we could hear the cracking of the trees and their limbs. I kept my right hand on the car door handle and put my legs in a position to enable me to quickly exit the car should a tree start falling down on our SUV. Chuck kept his eye on the road while I kept my eyes on the trees around us.

Luckily I had posted on Facebook via my cell phone that we were having difficulty in order to warn others who may be heading down our road. A friend of mine, who lived back in the center of town, responded that although she had no power, she had running water and a gas fireplace. More importantly, it was a safe place for us to spend the night. We precariously made our way to her house and over an hour later, thanked our lucky stars for having made it to her home safely.

Our road (Route 9) two days after the storm

 The next morning we attempted to make our way back to our home, initially with no success. We were also low on gas in my car (I know, my mother always yells at me for keeping my gas tank too low!) and then realized exactly what a tough situation we were in. Nobody had power in town; gas stations, ATMs, restaurants, convenience stores, NOBODY! We decided to try and head towards Amherst, which is the next town over, and were shocked at what we saw. Fallen trees, snapped utility poles, fallen power lines, abandoned cars. Everywhere. At some points, we actually had to do a bit of off roading with my SUV in order to get over to the next town. Luckily we did find a gas station to fill up at one hour later where it was widespread panic. People were grabbing nonperishable goods off the shelves as they didn’t know when they would be able to gain access again to a store. ATM machines at the gas pumps were sporadically working. We realized that we only had $45 in cash between the two of us for god knows how long and we were trying to figure out the best way to use it. Eventually we got one of our credit cards to work at the pump and we tucked the $45 away hoping it would be enough to see us through if we had no access to banks or ATMs over the next several days.

We then decided to try and make our way to our home from the opposite end of Route 9 which was the road the gas station was on. Luckily our dog was not home alone (so glad I booked that dog sitter!), but I had none of my medications and we feared the worse had happened to our home. We live on a lot surrounded by large oak and pine trees and all I could envision was one on top of our home. Both Chuck and I had spent some time back in June doing some relief work in a nearby community that was struck by a tornado and the images of those obliterated homes was all my mind could see.

As we drove further down Route 9 towards our home, we were stopped at a road closed sign by a town police officer who instructed us that we could not continue down the road. I got out of the car and told him that I needed to get medications, especially since the stores were all closed. After giving us specific instructions about how to deal with fallen power lines, he allowed us through the blockade to go as far as our car would let us. He told us we may need to walk a part of the way. My Kia Sportage got a work out that day, but held steadfast as it swerved around downed power lines and large trees to deliver us right to the top of our driveway. It was so strange to leave our car right in a road that usually sees traffic zooming by at 50mph. Now, the usually busy road looked like a path through an area of dense woods.

As we approached our property, I could barely hold back the tears. They say that when a disaster strikes, the most important thing is that you and your loved ones are safe. While this is true, it is also traumatic to be dealing with the possibility of where you call your home no longer existing or being severely damaged. Where would we go if we couldn’t live there? What if our safe haven in this world was no longer? I could see Chuck tense up as we got closer. This house was so important to him. They say that a house is just a building but it wasn’t. It was our home.

Our home was still there. And in one piece. Relief flooded my body. There were more trees down than I could count, but the house was intact. There was hope…..

Photos Courtesy of Chuck Myers/Christine Molloy
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